Genetic Counseling Research: A Practical Guide

Genetic Counseling Research: A Practical Guide is the first text devoted to research methodology in genetic counseling. This text offers step-by-step guidance for conducting research, from the development of a question to the publication of findings. Genetic counseling examples, user-friendly worksheets, and practical tips guide readers through the research and publication processes. With a highly accessible, pedagogical approach, this book will help promote quality research by genetic counselors and research supervisors-and in turn, increase the knowledge base for genetic counseling practice, other aspects of genetic counseling service delivery, and professional education. It will be an invaluable resource to the next generation of genetic counseling and its surrounding disciplines. "An essential volume for genetic counseling research supervisors and their students, as well as practicing genetic counselors who have exciting research ideas but lack expertise in research design and development. Practical exercises help build confidence and skills to unleash your inner investigator. I wish this book were available when I first started my research activities." --Robert Resta, Genetic Counselor, Swedish Medical Center, Seattle, WA"To fully realize the potential of Genetic Counseling, its practitioners must take an active role in executing, translating, and interpreting research. The field is now fortunate to have a valuable resource at hand, in the form of Genetic Counseling Research: A Practical Guide. The range of topics, its practical focus, and accessible style will make it the definitive resource as Genetic Counselors become ever more critical to realizing the promise of genomic medicine." --Jim Evans, MD, PhD, Bryson Distinguished Professor of Genetics & Medicine, University of North Carolina, Chapel HillPreface ; Chapter 1: Developing Research Questions ; Chapter 2: Finding Sources ; Chapter 3: Writing a Review of Literature ; Chapter 4: Ethics in Research ; Chapter 5: Choosing a Paradigm ; Chapter 6: Designing a Quantitative Study ; Chapter 7: Quantitative Data Analysis: I've got data, how do I get answers? ; Chapter 8: Conducting Qualitative Genetic Counseling Research ; Chapter 9: Preparing a Manuscript for Publication ; Chapter 10: Guidelines for Directing Research ; References ; Appendix: Additional Resources for Researchers and Research Supervisors